Today I drove “up t’north” – all the way to Birmingham, for the Young Dementia conference. And what a programme it was!
We heard from those living with young onset dementia, both individuals with the diagnosis, and those caring for and supporting loved ones with the diagnosis. Hearing the voices of those living it is more powerful than listening to any professional describing what they think it might be like.
We heard from professionals too, of course, and there was great passions in the room about delivering the services and support that families want and need. Frustration was felt, knowing that we are far from delivering. Real action and investment is needed. Creative and innovative service design. Research into care as well as cure.
The voices have been heard. Now the work begins.
Read more of my musings and collected “shares” on my facebook page: https://www.facebook.com/Tales-from-Memory-Corner-stories-from-about-dementialand-167001307060076/?ref=settings