Speaking to those who hold the purse strings……

Young Onset Dementia is a hugely under-resources field. In my previous role, we started our own service for the cohort of under 65s as there was nothing for them in our patch. The Occupational Therapist run group is still running weekly. Sadly, the monthly carer support group is no longer running
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Which me am I today?

Today is World Alzheimer’s Day so it seems appropriate that today’s blog is about highlighting the post code lottery that exists with regards to services for those of us with Young Onset Dementia…..


The CCG’s Governing Body is responsible for the formal decision making for the organisation, which is responsible for buying and planning (commissioning) hospital, mental health and community health care services for the people living in the East Riding of Yorkshire area.

Nicki Sparling, Assistant Director of Quality and Improvement / Deputy Lead Nurse of NHS East Riding of Yorkshire Clinical Commissioning Group (long name badge required!) asked me to talk to my local Governing body yesterday.

So this exhausting month continued…..It was another wet miserable day – I don’t think the rain had stopped since the day before which was very disappointing. We’d been spoilt over the summer so wet weather had come as a shock a…

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